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Postal Contact

Postal Contact Chairman
downsyndrome OK
c/o 28 Stopham Road
Maidenbower
CRAWLEY (W.Sussex)
RH10 7JF
United Kingdom


e-mail: infodownsyndromeok.org.uk

downsyndrome OK is a Registered Charity number 1099580 , Reg. Company No. 04756272

Trustees Committee

downsyndrome OK covers members in West and South West of Greater London, Surrey and West Sussex.

All our trustees/committee members & DSA officers listed below are available to our members & those seeking help or support in our area. All Trustees/Committee members have a son or daughter with Down's Syndrome ranging in age from 1 to 34 years.

We do our best to respond quickly however we work as volunteers so please understand if there is a delay.

Several subgroups meet regularly to exchange ideas, information and support one another. Other affiliates of DSA or groups with similar aims in S.E. England near us are listed below.

Responsibility Name Contact details Parent of
Chairman Mr. Paul Everington 01293 889777
pauldownsyndromeok.org.uk

Daughter 1997
Vice Chairman & Hon.Treasurer Mrs. Karen Edmonds 020 8330 1597
karendownsyndromeok.org.uk

Son 1994
Hon. Secretary Mrs. Jo Tofts 020 8337 6715
jodownsyndromeok.org.uk

Son 1996
Newsletter Editor & Minutes Secretary Mrs. Shirley Quemby 020 8642 3720
(Fax: 020 8241 3947)
shirleydownsyndromeok.org.uk

Son 1971
Membership Secretary Mrs. Janine Brewster 020 8642 5219
janinedownsyndromeok.org.uk

Daughter 2003
Website Coordinator Mr. Ajit Mané 020 8979 7485
ajitdownsyndromeok.org.uk

Daughter 1981
Website Coordinator Mr. Jason Vine 020 8405 9329
Jasondownsyndromeok.org.uk

Son 2004
Librarian Vacant -


-
Social Secretary Mrs. Donna Self 020 8393 8685
donnadownsyndromeok.org.uk

Son 1997
Trustees/Committee members Mrs. Bambina Gonsalves 020 8640 7248
bambinadownsyndromeok.org.uk

Son 1996
Mrs. Helen Pattison 01372 842911
helendownsyndromeok.org.uk
Son 2001


Down's Syndrome Association (Organisation for England, Wales, N.I.)

Down's Syndrome Association
The Langdon Down Centre
2A Langdon Park
Teddington (Middx)
TW11 9PS

Phone: 0845 2300372
Fax: 0845 2300373
Web: www.downs-syndrome.org.uk
e-mail: infodowns-syndrome.org.uk

Reg. Charity 1061474, Reg. Company No. 3310024

Other affiliates of DSA or similar groups near us

Down's Syndrome London

Convenient for North & Central London. Most members have small children or babies with D S.

Contact: Ros Innes 020 7435 9679 or Richard Davis 020 8815 0070 or 020 8883 8638

Web: www.downs-syndrome-london.org.uk
e-mail: infodowns-syndrome-london.org.uk

North London: PODS

P.O.D.S is Parents of Down's Syndrome, a support group based in north London.

Web:www.highgate-cltc.co.uk/pods/index.htm

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